ISSN : 2146-3123
E-ISSN : 2146-3131

Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
Meltem Dinleyici1, Kürşat Bora Çarman2, Canan Özdemir3, Koray Harmancı4, Makbule Eren5, Birgül Kirel6, Enver Şimşek6, Coşkun Yarar2, Aysu Duyan Çamurdan7, Figen Şahin Dağlı7
1Department of Social Pediatrics, Eskişehir Osmangazi University School of Medicine, Eskişehir, Turkey
2Department of Pediatric Neurology, Eskişehir Osmangazi University School of Medicine, Eskişehir, Turkey
3Department of Pediatric Hematology and Oncology, Eskişehir Osmangazi University School of Medicine, Eskişehir, Turkey
4Department of Pediatric Allergy and Immunology, Eskişehir Osmangazi University School of Medicine, Eskişehir, Turkey
5Department of Pediatric Gastroenterology and Hepatology, Eskişehir Osmangazi University School of Medicine, Eskişehir, Turkey
6Department of Pediatric Endocrinology, Eskişehir Osmangazi University School of Medicine, Eskişehir, Turkey
7Department of Social Pediatrics, Gazi University School of Medicine, Ankara, Turkey
DOI : 10.4274/balkanmedj.galenos.2019.2019.7.142
Pages : 34-42

Abstract

Background: Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.
Aims: To evaluate the HrQoL of healthy siblings of children with chronic disease.
Study Design: Cross-sectional study.
Methods: The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.
Results: This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).
Conclusion: Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases.

Keywords : Children, chronic disease, quality of life, sibling
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