ISSN : 2146-3123
E-ISSN : 2146-3131

Mehmet Kayaalp1
1National Library of Medicine, National Institutes of Health, Maryland, ABD
DOI : 10.4274/balkanmedj.2017.0966
Pages : 8-17
Protecting patient privacy requires various technical tools. It involves regulations for sharing, de-identifying, securely storing, transmitting and handling protected health information (PHI). It involves privacy laws and legal agreements. It requires establishing rules for monitoring privacy leaks, determining actions when they occur, and handling de-identified clinical narrative reports. Deidentification is one such indispensable instrument in this set of privacy tools.

Abstract

Privacy was defined as a fundamental human right in the Universal Declaration of Human Rights at the 1948 United Nations General Assembly. However, there is still no consensus on what constitutes privacy. In this review, we look at the evolution of privacy as a concept from the era of Hippocrates to the era of social media and big data. To appreciate the modern measures of patient privacy protection and correctly interpret the current regulatory framework in the United States, we need to analyze and understand the concepts of individually identifiable information, individually identifiable health information, protected health information, and de-identification. The Privacy Rule of the Health Insurance Portability and Accountability Act defines the regulatory framework and casts a balance between protective measures and access to health information for secondary (scientific) use. The rule defines the conditions when health information is prote